Views of adolescents and their parents on mobile apps for epilepsy self-management.
Identifieur interne : 000061 ( Main/Exploration ); précédent : 000060; suivant : 000062Views of adolescents and their parents on mobile apps for epilepsy self-management.
Auteurs : Blandine Dozières-Puyravel [France] ; Marion Danse [France] ; Estelle Goujon [France] ; Sophie Höhn [France] ; Stéphane Auvin [France]Source :
- Epilepsy & behavior : E&B [ 1525-5069 ] ; 2020.
Descripteurs français
- KwdFr :
- Adhésion au traitement médicamenteux (psychologie), Adolescent (MeSH), Applications mobiles (MeSH), Comportement de l'adolescent (psychologie), Enfant (MeSH), Enquêtes et questionnaires (MeSH), Femelle (MeSH), Gestion de soi (méthodes), Gestion de soi (psychologie), Humains (MeSH), Mâle (MeSH), Parents (psychologie), Épilepsie (psychologie), Épilepsie (thérapie), Études de suivi (MeSH).
- MESH :
- méthodes : Gestion de soi.
- psychologie : Adhésion au traitement médicamenteux, Comportement de l'adolescent, Gestion de soi, Parents, Épilepsie.
- thérapie : Épilepsie.
- Adolescent, Applications mobiles, Enfant, Enquêtes et questionnaires, Femelle, Humains, Mâle, Études de suivi.
English descriptors
- KwdEn :
- Adolescent (MeSH), Adolescent Behavior (psychology), Child (MeSH), Epilepsy (psychology), Epilepsy (therapy), Female (MeSH), Follow-Up Studies (MeSH), Humans (MeSH), Male (MeSH), Medication Adherence (psychology), Mobile Applications (MeSH), Parents (psychology), Self-Management (methods), Self-Management (psychology), Surveys and Questionnaires (MeSH).
- MESH :
- methods : Self-Management.
- psychology : Adolescent Behavior, Epilepsy, Medication Adherence, Parents, Self-Management.
- therapy : Epilepsy.
- Adolescent, Child, Female, Follow-Up Studies, Humans, Male, Mobile Applications, Surveys and Questionnaires.
Abstract
INTRODUCTION
New technologies are ubiquitous in our everyday lives, and this is especially true for teenagers. Very few mobile apps have been designed for adolescents with epilepsy. In order to better understand their expectations as well as those of their parents, we conducted a survey on this topic.
METHODS
The survey consisted of an anonymous self-administered questionnaire that was distributed to adolescents with epilepsy aged 10 to 18 years old and their parents. Questionnaires contained 15 questions including 8 multiple choice questions, 5 groups of multiple questions with a rating scale ranging from 1 to 6, and 2 open-ended questions covering the scope of the interest of epilepsy self-management apps, seizure and epilepsy management, antiseizure medications, and information on epilepsy.
RESULTS
Surveys were answered by 17 teenagers and 19 parents. It showed that adolescents embrace new technologies. Parents' highest expectations regarding mobile apps contents were seizure management and emergency information, while adolescents were expecting contents on epilepsy daily life, as well as a tool that would improve antiseizure medication compliance.
CONCLUSION
Parents and adolescents' expectations on the content of an epilepsy app were different.
DOI: 10.1016/j.yebeh.2020.107039
PubMed: 32247177
Affiliations:
Links toward previous steps (curation, corpus...)
Le document en format XML
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Electronic address: stephane.auvin@aphp.fr.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Pediatric Neurology, CHU Hôpital Robert-Debré, APHP, Paris, France; Expert Center for Rare Epilepsies, CHU Hôpital Robert Debré, APHP, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author></analytic><series><title level="j">Epilepsy & behavior : E&B</title><idno type="eISSN">1525-5069</idno><imprint><date when="2020" type="published">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent (MeSH)</term><term>Adolescent Behavior (psychology)</term><term>Child (MeSH)</term><term>Epilepsy (psychology)</term><term>Epilepsy (therapy)</term><term>Female (MeSH)</term><term>Follow-Up Studies (MeSH)</term><term>Humans (MeSH)</term><term>Male (MeSH)</term><term>Medication Adherence (psychology)</term><term>Mobile Applications (MeSH)</term><term>Parents (psychology)</term><term>Self-Management (methods)</term><term>Self-Management (psychology)</term><term>Surveys and Questionnaires (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adhésion au traitement médicamenteux (psychologie)</term><term>Adolescent (MeSH)</term><term>Applications mobiles (MeSH)</term><term>Comportement de l'adolescent (psychologie)</term><term>Enfant (MeSH)</term><term>Enquêtes et questionnaires (MeSH)</term><term>Femelle (MeSH)</term><term>Gestion de soi (méthodes)</term><term>Gestion de soi (psychologie)</term><term>Humains (MeSH)</term><term>Mâle (MeSH)</term><term>Parents (psychologie)</term><term>Épilepsie (psychologie)</term><term>Épilepsie (thérapie)</term><term>Études de suivi (MeSH)</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Self-Management</term></keywords><keywords scheme="MESH" qualifier="méthodes" xml:lang="fr"><term>Gestion de soi</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Adhésion au traitement médicamenteux</term><term>Comportement de l'adolescent</term><term>Gestion de soi</term><term>Parents</term><term>Épilepsie</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Adolescent Behavior</term><term>Epilepsy</term><term>Medication Adherence</term><term>Parents</term><term>Self-Management</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Epilepsy</term></keywords><keywords scheme="MESH" qualifier="thérapie" xml:lang="fr"><term>Épilepsie</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Child</term><term>Female</term><term>Follow-Up Studies</term><term>Humans</term><term>Male</term><term>Mobile Applications</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term><term>Applications mobiles</term><term>Enfant</term><term>Enquêtes et questionnaires</term><term>Femelle</term><term>Humains</term><term>Mâle</term><term>Études de suivi</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>INTRODUCTION</b></p><p>New technologies are ubiquitous in our everyday lives, and this is especially true for teenagers. Very few mobile apps have been designed for adolescents with epilepsy. In order to better understand their expectations as well as those of their parents, we conducted a survey on this topic.</p></div><div type="abstract" xml:lang="en"><p><b>METHODS</b></p><p>The survey consisted of an anonymous self-administered questionnaire that was distributed to adolescents with epilepsy aged 10 to 18 years old and their parents. Questionnaires contained 15 questions including 8 multiple choice questions, 5 groups of multiple questions with a rating scale ranging from 1 to 6, and 2 open-ended questions covering the scope of the interest of epilepsy self-management apps, seizure and epilepsy management, antiseizure medications, and information on epilepsy.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>Surveys were answered by 17 teenagers and 19 parents. It showed that adolescents embrace new technologies. Parents' highest expectations regarding mobile apps contents were seizure management and emergency information, while adolescents were expecting contents on epilepsy daily life, as well as a tool that would improve antiseizure medication compliance.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSION</b></p><p>Parents and adolescents' expectations on the content of an epilepsy app were different.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" IndexingMethod="Curated" Owner="NLM"><PMID Version="1">32247177</PMID><DateCompleted><Year>2021</Year><Month>01</Month><Day>18</Day></DateCompleted><DateRevised><Year>2021</Year><Month>01</Month><Day>18</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1525-5069</ISSN><JournalIssue CitedMedium="Internet"><Volume>106</Volume><PubDate><Year>2020</Year><Month>05</Month></PubDate></JournalIssue><Title>Epilepsy & behavior : E&B</Title><ISOAbbreviation>Epilepsy Behav</ISOAbbreviation></Journal><ArticleTitle>Views of adolescents and their parents on mobile apps for epilepsy self-management.</ArticleTitle><Pagination><MedlinePgn>107039</MedlinePgn></Pagination><ELocationID EIdType="pii" ValidYN="Y">S1525-5050(20)30218-3</ELocationID><ELocationID EIdType="doi" ValidYN="Y">10.1016/j.yebeh.2020.107039</ELocationID><Abstract><AbstractText Label="INTRODUCTION">New technologies are ubiquitous in our everyday lives, and this is especially true for teenagers. Very few mobile apps have been designed for adolescents with epilepsy. In order to better understand their expectations as well as those of their parents, we conducted a survey on this topic.</AbstractText><AbstractText Label="METHODS">The survey consisted of an anonymous self-administered questionnaire that was distributed to adolescents with epilepsy aged 10 to 18 years old and their parents. Questionnaires contained 15 questions including 8 multiple choice questions, 5 groups of multiple questions with a rating scale ranging from 1 to 6, and 2 open-ended questions covering the scope of the interest of epilepsy self-management apps, seizure and epilepsy management, antiseizure medications, and information on epilepsy.</AbstractText><AbstractText Label="RESULTS">Surveys were answered by 17 teenagers and 19 parents. It showed that adolescents embrace new technologies. Parents' highest expectations regarding mobile apps contents were seizure management and emergency information, while adolescents were expecting contents on epilepsy daily life, as well as a tool that would improve antiseizure medication compliance.</AbstractText><AbstractText Label="CONCLUSION">Parents and adolescents' expectations on the content of an epilepsy app were different.</AbstractText><CopyrightInformation>Copyright © 2020 Elsevier Inc. All rights reserved.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Dozières-Puyravel</LastName><ForeName>Blandine</ForeName><Initials>B</Initials><AffiliationInfo><Affiliation>Department of Pediatric Neurology, CHU Hôpital Robert-Debré, APHP, Paris, France; Expert Center for Rare Epilepsies, CHU Hôpital Robert Debré, APHP, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Danse</LastName><ForeName>Marion</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Pediatric Neurology, CHU Hôpital Robert-Debré, APHP, Paris, France; Expert Center for Rare Epilepsies, CHU Hôpital Robert Debré, APHP, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Goujon</LastName><ForeName>Estelle</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Department of Pediatric Neurology, CHU Hôpital Robert-Debré, APHP, Paris, France; Expert Center for Rare Epilepsies, CHU Hôpital Robert Debré, APHP, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Höhn</LastName><ForeName>Sophie</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Pediatric Neurology, CHU Hôpital Robert-Debré, APHP, Paris, France; Expert Center for Rare Epilepsies, CHU Hôpital Robert Debré, APHP, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Auvin</LastName><ForeName>Stéphane</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Pediatric Neurology, CHU Hôpital Robert-Debré, APHP, Paris, France; Expert Center for Rare Epilepsies, CHU Hôpital Robert Debré, APHP, Paris, France. Electronic address: stephane.auvin@aphp.fr.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2020</Year><Month>04</Month><Day>01</Day></ArticleDate></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Epilepsy Behav</MedlineTA><NlmUniqueID>100892858</NlmUniqueID><ISSNLinking>1525-5050</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000294" MajorTopicYN="N">Adolescent Behavior</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D004827" MajorTopicYN="N">Epilepsy</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName><QualifierName UI="Q000628" MajorTopicYN="N">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005500" MajorTopicYN="N">Follow-Up Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D055118" MajorTopicYN="N">Medication Adherence</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D063731" MajorTopicYN="Y">Mobile Applications</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010290" MajorTopicYN="N">Parents</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D000073278" MajorTopicYN="N">Self-Management</DescriptorName><QualifierName UI="Q000379" MajorTopicYN="N">methods</QualifierName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D011795" MajorTopicYN="Y">Surveys and Questionnaires</DescriptorName></MeshHeading></MeshHeadingList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="Y">Adolescence</Keyword><Keyword MajorTopicYN="Y">Epilepsy</Keyword><Keyword MajorTopicYN="Y">Mobile app</Keyword><Keyword MajorTopicYN="Y">Seizure</Keyword><Keyword MajorTopicYN="Y">Self-management</Keyword><Keyword MajorTopicYN="Y">Transition</Keyword></KeywordList><CoiStatement>Declaration of competing interest The authors report no conflicts of interest.</CoiStatement></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2020</Year><Month>01</Month><Day>19</Day></PubMedPubDate><PubMedPubDate PubStatus="revised"><Year>2020</Year><Month>03</Month><Day>10</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2020</Year><Month>03</Month><Day>10</Day></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2020</Year><Month>4</Month><Day>5</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2021</Year><Month>1</Month><Day>20</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2020</Year><Month>4</Month><Day>5</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">32247177</ArticleId><ArticleId IdType="pii">S1525-5050(20)30218-3</ArticleId><ArticleId IdType="doi">10.1016/j.yebeh.2020.107039</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>France</li></country><region><li>Île-de-France</li></region><settlement><li>Paris</li></settlement></list><tree><country name="France"><region name="Île-de-France"><name sortKey="Dozieres Puyravel, Blandine" sort="Dozieres Puyravel, Blandine" uniqKey="Dozieres Puyravel B" first="Blandine" last="Dozières-Puyravel">Blandine Dozières-Puyravel</name></region><name sortKey="Auvin, Stephane" sort="Auvin, Stephane" uniqKey="Auvin S" first="Stéphane" last="Auvin">Stéphane Auvin</name><name sortKey="Danse, Marion" sort="Danse, Marion" uniqKey="Danse M" first="Marion" last="Danse">Marion Danse</name><name sortKey="Goujon, Estelle" sort="Goujon, Estelle" uniqKey="Goujon E" first="Estelle" last="Goujon">Estelle Goujon</name><name sortKey="Hohn, Sophie" sort="Hohn, Sophie" uniqKey="Hohn S" first="Sophie" last="Höhn">Sophie Höhn</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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